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I didn't care that it could kill him in the next two minutes, two months or two decades. If we only had two weeks together, then I wanted those two weeks. We had geeky chemistry. But perhaps even more importantly, I liked him so darn much. Whatever time he had left, I wanted to spend it with him.
Then the day came when we met in person: I'll never forget jumping out of my car and running to him. And that was the best, the longest, the most amazing hug in the history of mankind. That was our one date. He proposed on April 8th and we said our "I do's" on April 21st. Can it be that was over four years ago? They say that if the time flies, you know you're married to the right person.
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Michael still has PAP. If anything, it's getting worse. When we first married, he coughed up the excess lung protein once or twice a month. Every time the protein came up, I cheered him on as he coughed, retched and gagged, his head buried in a wastebasket. Each thick, sticky glob of protein that came up bought us more time together. Four years later, it's slowly gotten worse. Now, he wakes abruptly in the night, lurches to a sitting position in his hospital bed, coughing up protein.
This goes on day and night.
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I make sure he's still breathing every time I get up to use the bathroom at night. Last Memorial Day, he almost died. His lung tissue wasn't exchanging CO2 for oxygen.
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With quick thinking, he cranked up the oxygen concentrator and ODed on 8L of pure oxygen. It saved his life. I rushed him to the hospital and they all but threw him out. They didn't give a damn.
We try to look on the bright side. Because of PAP, Michael doesn't have to go off to an office every day. Because of PAP, he can't lose his paycheck. And because of PAP, I got to realize my dream of freelancing from home. Sure, it's been tough. It'll probably get tougher. But after all, at some point in their lives, most people get sick.
And their husband or wife is there for them to the bitter end. The only difference is that I knew what would kill my husband before we married. Love is not love Which alters when it alteration finds, Or bends with the remover to remove: If this be error, and upon me prov'd, I never writ, nor no man ever lov'd. If our love-story brought a tear to your eye, your contribution of any amount to the fund to Help Michael Breathe would be more appreciated than you'll ever know.
This article originally appeared on YourTango.
News Politics Entertainment Communities. Opinion HuffPost Personal Videos. It wasn't that I wanted to marry him. It was that I couldn't NOT marry him. Sure, the details of our lives aren't perfect. But Michael is perfect for me.